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Fighting metastatic breast cancer one day, one week, one month at a time

August 23, 2013

By Houston chronicle Boomertown blog

Lori Sumako was your perfect, stage 1 breast cancer patient.

She followed all of her doctor’s orders. She endured the surgery and chemotherapy without (too many) complaints. She and husband Rick Mitchell gave thanks for each year that she was cancer-free.
Five years later, Sumako, a labor and delivery nurse, was told she was cured. A year after that, she started to believe it.


July 18, 2013

By MBCN Press Release

NEW YORK-JULY 18, 2013-Hundreds of metastatic breast cancer patients will convene in Houston for the Metastatic Breast Cancer Network's (MBCN's) 7th Annual National Conference presented in conjunction with MD Anderson Cancer Center on September 20-22, 2013. "We're really excited to offer expanded breakout sessions and networking opportunities," says conference chair and MBCN board member Deb Tincher. "This year's theme is ‘New Directions in Metastatic Breast Cancer.' Our expert speakers will address cutting-edge developments in treating metastatic breast cancer as well as everyday issues confronting people living with the disease."

Metastatic Breast Cancer Network Names Shirley Mertz New President

January 15, 2013

The Metastatic Breast Cancer Network (MBCN) announced the following leadership changes, effective as of January 1, 2013. Shirley Mertz is the new President, replacing former president Michele Przypyszny. Ginny Knackmuhs will serve as Vice President. New board member Katherine O’Brien replaces Kathy Coursey-Boes. Katherine will serve as Secretary and Public Relations Chair. Board members Joani Gudeman and Deb Tincher continue to serve as Chair of Outreach and Volunteers and Chair of Conferences and Fundraising, respectively.

Advanced breast cancer community advocates for more support

January 15, 2013

Ginny Knackmuhs, 61, of Wyckoff, N.J. was diagnosed with stage IV metastatic breast cancer in 2009. She remembers well the frustrating experience of searching for information and trying to identify with resources based on others’ recommendations. Ginny is now a board member of Metastatic Breast Cancer Network, one of 13 advocacy organizations that worked with Novartis Pharmaceuticals Corporation to create Count Us, Know Us, Join Us, a campaign that was created to amplify the voice of people living with advanced breast cancer.

LBBC and Metastatic Breast Cancer Network Release New Publication

January 9, 2013

By Globe newswire

LBBC and the Metastatic Breast Cancer Network announce the release of The Metastatic Breast Cancer Series: Guide for the Newly Diagnosed, a free publication to help address the needs you may have in the first months following a diagnosis of metastatic (stage IV) breast cancer.

Metastatic Breast Cancer Network Presents Dr. Patricia Steeg with the Ellen Moskowitz &Suzanne Hebert Leadership Grant

October 22, 2012


Contact: Metastatic Breast Cancer Network (MBCN)
Contact Person: Katherine O’Brien
Telephone Number: 888-500-0370 (voice mail)
Email Address: mbcn@mbcn.org

Web site: www.mbcn.org



Interrupting Cancer's Travel Plans

May 1, 2012

By Stephen Ornes, Cancer Today

Randy Watnick?s pursuit of a better drug against metastatic cancer began late at night in early 2005. His infant daughter had woken up in tears at their home in Newton, Mass., near Boston. The molecular biologist climbed out of bed, scooped up the sobbing baby, and helped her get back to sleep. Normally able to maintain a healthy distance between work and family, Watnick was unable to fend off thoughts about tumor biology.

For individuals with metastatic disease, when hope arrives, it arrives in “these very tiny increments,” says Suzanne Hebert, the vice president of the Metastatic Breast Cancer Network, an organization that strives to raise awareness of metastatic patients’ needs. In 2004, Hebert was diagnosed with stage IV breast cancer. She says she’s “guarded” when she hears news about new treatments for metastatic disease.

Patient discusses clinical trial for advanced breast cancer

February 28, 2012

By SciVee.com MD Anderson

Seven years ago, Suzanne Hebert was diagnosed with metastatic breast cancer that spread to her liver and bones. After four rounds of chemotherapy and decreasing response rates, she decided it was time for a change. That change came after advice from a friend, who also had advanced breast cancer, and was enrolled on a clinical trial at MD Anderson.

Trials Show Improved Outcome in Metastatic Breast Cancer Patients

December 12, 2011

By Mikaela Conley, ABC Nightly News

For seven years, Suzanne Hebert has undergone treatments, surgeries and chemotherapies to fight off her stage 4 breast cancer. She was diagnosed with the advanced stage cancer at age 39.

After years of chemotherapy treatments, a mastectomy and hormonal therapy -- during which not only was she "miserable, [but] the treatment wasn't working" -- Hebert joined a phase1 clinical trial out of MD Anderson in Texas, where researchers put her on a combined treatment of everolimus, a drug used to treat kidney and brain tumors, and arimidex, an anti-hormone therapy that decreases the amount of estrogen in the body.

Drugs Keep Tumors at Bay

December 8, 2011

By Ron Winslow, Wall Street Journal Online

SAN ANTONIO—Two drugs significantly extend the time that women with metastatic breast cancer can live without their tumors growing, potentially changing the landscape for 80% of patients with the disease, according to two separate studies released Wednesday.

....But Suzanne Hebert, 46 years old, of South Windsor, Conn., said that adding Afinitor to her treatment in another clinical trial appeared to shrink her tumor by 21% after three months.

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