MBCN in the News
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January 15, 2013
Ginny Knackmuhs, 61, of Wyckoff, N.J. was diagnosed with stage IV metastatic breast cancer in 2009. She remembers well the frustrating experience of searching for information and trying to identify with resources based on others’ recommendations. Ginny is now a board member of Metastatic Breast Cancer Network, one of 13 advocacy organizations that worked with Novartis Pharmaceuticals Corporation to create Count Us, Know Us, Join Us, a campaign that was created to amplify the voice of people living with advanced breast cancer.
January 9, 2013
By Globe newswire
LBBC and the Metastatic Breast Cancer Network announce the release of The Metastatic Breast Cancer Series: Guide for the Newly Diagnosed, a free publication to help address the needs you may have in the first months following a diagnosis of metastatic (stage IV) breast cancer.
October 22, 2012
FOR IMMEDIATE RELEASE
Contact: Metastatic Breast Cancer Network (MBCN)
Contact Person: Katherine O’Brien
Telephone Number: 888-500-0370 (voice mail)
Email Address: email@example.com
Web site: www.mbcn.org
May 1, 2012
By Stephen Ornes, Cancer Today
Randy Watnick?s pursuit of a better drug against metastatic cancer began late at night in early 2005. His infant daughter had woken up in tears at their home in Newton, Mass., near Boston. The molecular biologist climbed out of bed, scooped up the sobbing baby, and helped her get back to sleep. Normally able to maintain a healthy distance between work and family, Watnick was unable to fend off thoughts about tumor biology.
For individuals with metastatic disease, when hope arrives, it arrives in “these very tiny increments,” says Suzanne Hebert, the vice president of the Metastatic Breast Cancer Network, an organization that strives to raise awareness of metastatic patients’ needs. In 2004, Hebert was diagnosed with stage IV breast cancer. She says she’s “guarded” when she hears news about new treatments for metastatic disease.
February 28, 2012
By SciVee.com MD Anderson
Seven years ago, Suzanne Hebert was diagnosed with metastatic breast cancer that spread to her liver and bones. After four rounds of chemotherapy and decreasing response rates, she decided it was time for a change. That change came after advice from a friend, who also had advanced breast cancer, and was enrolled on a clinical trial at MD Anderson.
December 12, 2011
By Mikaela Conley, ABC Nightly News
For seven years, Suzanne Hebert has undergone treatments, surgeries and chemotherapies to fight off her stage 4 breast cancer. She was diagnosed with the advanced stage cancer at age 39.
After years of chemotherapy treatments, a mastectomy and hormonal therapy -- during which not only was she "miserable, [but] the treatment wasn't working" -- Hebert joined a phase1 clinical trial out of MD Anderson in Texas, where researchers put her on a combined treatment of everolimus, a drug used to treat kidney and brain tumors, and arimidex, an anti-hormone therapy that decreases the amount of estrogen in the body.
December 8, 2011
By Ron Winslow, Wall Street Journal Online
SAN ANTONIO—Two drugs significantly extend the time that women with metastatic breast cancer can live without their tumors growing, potentially changing the landscape for 80% of patients with the disease, according to two separate studies released Wednesday.
....But Suzanne Hebert, 46 years old, of South Windsor, Conn., said that adding Afinitor to her treatment in another clinical trial appeared to shrink her tumor by 21% after three months.
October 13, 2011
By Laura Woodin, AZ Health Connections
As we explained here, during National Breast Cancer Awareness Month we are focusing on people who are living with metastatic breast cancer.
Katherine O’Brien is a business-to-business editor from Chicago and a volunteer with the Metastatic Breast Cancer Network (MBCN) who contributed the following blog post about her experience with metastatic breast cancer:
At a 2009 breast cancer seminar, I met two MBCN volunteers: Joani Gudeman and Shirley Mertz. I had never met another person with metastatic breast cancer. Joani and Shirley made me feel less alone. Their activism inspired me.
October 13, 2011
By Coping Magazine
Do you know the 13 facts about metastatic breast cancer?
October 6, 2011
By The White House
This year, 230,000 women will be diagnosed with Breast Cancer. To kick off Breast Cancer awareness month, we brought in 15 “Champions of Change” who are leaders in the fight to end breast cancer. They represent activists, scientists and health care providers who are making a difference in this fight every day.
MBCN editor's note: We are proud that MBCN member Shirley A. Mertz has been recognized for her "passion and focus as a breast cancer activist, a voice for the needs of those who today are suffering with advanced or Stage IV breast cancer and those who one day will receive such a diagnosis"