Living Well with Advanced Breast Cancer
October 5, 2011
By Frankly Speaking About Cancer Internet Radio Show, Host Kim Thiboldeaux
In honor of Breast Cancer Awareness month, on today's episode, the Cancer Support Community focuses on Stage IV breast cancer, or what is commonly referred to as advanced breast cancer. Kim Thiboldeaux is joined by Ginny Knackmuhs, a patient living with and an advocate for advanced breast caner, and Dr. Lidia Schapira, a medical oncologist with a specialty in breast cancer from Gillette Center for Breast Cancer at Massachusetts General Hospital. Tune in to find out how to control advanced breast cancer while maintaining a healthy quality of life.
Susan Davis: Tireless MBC Advocate
August 21, 2011
By Katherine O'Brien, I hate breast cancer blog
“Susan was a strong, vocal person who confronted issues head on,” says Shirley Mertz, a fellow MBC Network volunteer. “She played a key role in getting Rep. Rosa De Lauro (CT) to introduce a resolution in the House to declare October 13 as Metastatic Breast Cancer Awareness Day.”
Dian Corneliussen-James: A Woman On A Mission
May 28, 2011
By Gayle Sulik
Dian Corneliussen-James, also known as CJ, has a history of helping to find missing persons. Toward the end of her 24-year career as an Air Force Intelligence Officer, Lieutenant Colonel Corneliussen-James took a position in the Defense Prisoner of War/Missing Personnel Office (DPMO) in Washington, D.C., and she continued in that position as a civilian following her Air Force retirement....
CJ didn't know at the time that this particular skill set would later serve in the identification of another group of missing persons, those diagnosed with metastatic (stage IV) breast cancer.
A Pink-Ribbon Race, Years Long
January 18, 2011
By Roni Caryn Rabin, New York Times
By the time Suzanne Hebert realized that her doctor was wrong and that the hard lump in her breast wasn’t a normal part of breast-feeding, the tumor was the size of a stopwatch and the cancer had spread to her spine.
Breast cancer reality: Not all happy endings
December 18, 2010
By Deb Tincher
In losing the heroic Elizabeth Edwards, we see the reality of breast cancer. It isn't all pretty pink ribbons and cures. Usually the celebrities who fight breast cancer and win are the public face of this disease. This is a teachable moment about the progress that has not been made in finding a cure.
Elizabeth Edwards inspired her fellow Stage IV sisters
December 13, 2010
By Chicago Tribune, Voice of the People, Katherine O'Brien
She inspired her fellow Stage IV sisters.
Despite her illness she maintained an active schedule - a source of hope for those similarly afflicted.We hear often about women, particularly celebrities, who have completed their treatment for an early-stage breast cancer. We rarely hear about women like Edwards whose breast cancer is treatable but ultimately unbeatable.
A hero of hope on cancer
December 11, 2010
By Rev. Pamela J. Breakey
The Metastatic Breast Cancer Network grieves with and for the Edwards family and the nation over the death of Elizabeth Edwards.
Elizabeth Edward's Cancer
December 11, 2010
By Ellen Moskowitz
Elizabeth Edwards remains a hero in the metastatic community. She gave a face, her face, to metastatic breast cancer. She let the world know that she was living with a terminal diagnosis.
Recognizing a Day of National Metastatic Breast Cancer Awareness
October 13, 2010
By Dr. Elaine Schattner, Huffington Post
Tired of seeing pink? You’re not alone, says Dr. Barron Lerner in a piece on Pink Ribbon Fatigue in the New York Times. While cancer awareness campaigns have heightened awareness about this condition, lessened women’s fear of the disease and helped raise needed funds for research and care, some are finding the whole pink thing a bit too much.
But for more than 160,000 women living in the U.S. with advanced, stage IV breast cancer, the situation is not one they can turn off on their TV sets, or avoid by skipping out from pink-decorated malls: they’re living and coping with the metastatic form of the disease, active treatments, side effects and, still, no known cure. Their outlook is tempered, maybe best portrayed in a spectrum of gray.
House Resolution 787 – Metastatic Breast Cancer Awareness Day October 13
October 2, 2010
By Kathy Coursey-Boes, Coping Magazine
On July 19, 2009, at 6am, I drove with my 12 year old daughter Addie from Oxford, Georgia to Washington, DC, to join our group of breast cancer patients and family members. The Metastatic Breast Cancer Network would train us in the legislative and advocacy process. The drive was long and the day was hot, but it was important for me to be in Washington and have my voice heard. It was important for Addie to see me fighting on behalf of my beliefs and the needs of others. I was part of the group representing all of us with stage IV breast cancer and the issues that are unique to us.