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Women with metastatic breast cancer clamor for a different awareness level this month

October 5, 2011

By Gary Schwitzer, Publisher, HealthNewsReview.org

Some breast cancer voices raise questions about simply raising "awareness" about breast cancer in October.

Some of them believe that raising awareness about screening, for example, should not be the only message or even the main message of the month.

Katherine O'Brien, who has metastatic breast cancer (MBC), and who publishes the iihatebreastcancer blog refers to being caught in "October's pink undertow."

Living Well with Advanced Breast Cancer

October 5, 2011

By Frankly Speaking About Cancer Internet Radio Show, Host Kim Thiboldeaux

In honor of Breast Cancer Awareness month, on today's episode, the Cancer Support Community focuses on Stage IV breast cancer, or what is commonly referred to as advanced breast cancer. Kim Thiboldeaux is joined by Ginny Knackmuhs, a patient living with and an advocate for advanced breast caner, and Dr. Lidia Schapira, a medical oncologist with a specialty in breast cancer from Gillette Center for Breast Cancer at Massachusetts General Hospital. Tune in to find out how to control advanced breast cancer while maintaining a healthy quality of life.

Susan Davis: Tireless MBC Advocate

August 21, 2011

By Katherine O'Brien, I hate breast cancer blog

“Susan was a strong, vocal person who confronted issues head on,” says Shirley Mertz, a fellow MBC Network volunteer. “She played a key role in getting Rep. Rosa De Lauro (CT) to introduce a resolution in the House to declare October 13 as Metastatic Breast Cancer Awareness Day.”

Dian Corneliussen-James: A Woman On A Mission

May 28, 2011

By Gayle Sulik

Dian Corneliussen-James, also known as CJ, has a history of helping to find missing persons. Toward the end of her 24-year career as an Air Force Intelligence Officer, Lieutenant Colonel Corneliussen-James took a position in the Defense Prisoner of War/Missing Personnel Office (DPMO) in Washington, D.C., and she continued in that position as a civilian following her Air Force retirement....

CJ didn't know at the time that this particular skill set would later serve in the identification of another group of missing persons, those diagnosed with metastatic (stage IV) breast cancer.

A Pink-Ribbon Race, Years Long

January 18, 2011

By Roni Caryn Rabin, New York Times

By the time Suzanne Hebert realized that her doctor was wrong and that the hard lump in her breast wasn’t a normal part of breast-feeding, the tumor was the size of a stopwatch and the cancer had spread to her spine.

Breast cancer reality: Not all happy endings

December 18, 2010

By Deb Tincher

In losing the heroic Elizabeth Edwards, we see the reality of breast cancer. It isn't all pretty pink ribbons and cures. Usually the celebrities who fight breast cancer and win are the public face of this disease. This is a teachable moment about the progress that has not been made in finding a cure.

Elizabeth Edwards inspired her fellow Stage IV sisters

December 13, 2010

By Chicago Tribune, Voice of the People, Katherine O'Brien

She inspired her fellow Stage IV sisters.

Despite her illness she maintained an active schedule - a source of hope for those similarly afflicted.We hear often about women, particularly celebrities, who have completed their treatment for an early-stage breast cancer. We rarely hear about women like Edwards whose breast cancer is treatable but ultimately unbeatable.

A hero of hope on cancer

December 11, 2010

By Rev. Pamela J. Breakey

The Metastatic Breast Cancer Network grieves with and for the Edwards family and the nation over the death of Elizabeth Edwards.

Elizabeth Edward's Cancer

December 11, 2010

By Ellen Moskowitz

Elizabeth Edwards remains a hero in the metastatic community. She gave a face, her face, to metastatic breast cancer. She let the world know that she was living with a terminal diagnosis.

Recognizing a Day of National Metastatic Breast Cancer Awareness

October 13, 2010

By Dr. Elaine Schattner, Huffington Post

Tired of seeing pink? You’re not alone, says Dr. Barron Lerner in a piece on Pink Ribbon Fatigue in the New York Times. While cancer awareness campaigns have heightened awareness about this condition, lessened women’s fear of the disease and helped raise needed funds for research and care, some are finding the whole pink thing a bit too much.

But for more than 160,000 women living in the U.S. with advanced, stage IV breast cancer, the situation is not one they can turn off on their TV sets, or avoid by skipping out from pink-decorated malls: they’re living and coping with the metastatic form of the disease, active treatments, side effects and, still, no known cure. Their outlook is tempered, maybe best portrayed in a spectrum of gray.

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