MBCN in the News
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December 12, 2011
By Mikaela Conley, ABC Nightly News
For seven years, Suzanne Hebert has undergone treatments, surgeries and chemotherapies to fight off her stage 4 breast cancer. She was diagnosed with the advanced stage cancer at age 39.
After years of chemotherapy treatments, a mastectomy and hormonal therapy -- during which not only was she "miserable, [but] the treatment wasn't working" -- Hebert joined a phase1 clinical trial out of MD Anderson in Texas, where researchers put her on a combined treatment of everolimus, a drug used to treat kidney and brain tumors, and arimidex, an anti-hormone therapy that decreases the amount of estrogen in the body.
December 8, 2011
By Ron Winslow, Wall Street Journal Online
SAN ANTONIO—Two drugs significantly extend the time that women with metastatic breast cancer can live without their tumors growing, potentially changing the landscape for 80% of patients with the disease, according to two separate studies released Wednesday.
....But Suzanne Hebert, 46 years old, of South Windsor, Conn., said that adding Afinitor to her treatment in another clinical trial appeared to shrink her tumor by 21% after three months.
October 13, 2011
By Laura Woodin, AZ Health Connections
As we explained here, during National Breast Cancer Awareness Month we are focusing on people who are living with metastatic breast cancer.
Katherine O’Brien is a business-to-business editor from Chicago and a volunteer with the Metastatic Breast Cancer Network (MBCN) who contributed the following blog post about her experience with metastatic breast cancer:
At a 2009 breast cancer seminar, I met two MBCN volunteers: Joani Gudeman and Shirley Mertz. I had never met another person with metastatic breast cancer. Joani and Shirley made me feel less alone. Their activism inspired me.
October 13, 2011
By Coping Magazine
Do you know the 13 facts about metastatic breast cancer?
October 6, 2011
By The White House
This year, 230,000 women will be diagnosed with Breast Cancer. To kick off Breast Cancer awareness month, we brought in 15 “Champions of Change” who are leaders in the fight to end breast cancer. They represent activists, scientists and health care providers who are making a difference in this fight every day.
MBCN editor's note: We are proud that MBCN member Shirley A. Mertz has been recognized for her "passion and focus as a breast cancer activist, a voice for the needs of those who today are suffering with advanced or Stage IV breast cancer and those who one day will receive such a diagnosis"
October 5, 2011
By Gary Schwitzer, Publisher, HealthNewsReview.org
Some breast cancer voices raise questions about simply raising "awareness" about breast cancer in October.
Some of them believe that raising awareness about screening, for example, should not be the only message or even the main message of the month.
Katherine O'Brien, who has metastatic breast cancer (MBC), and who publishes the iihatebreastcancer blog refers to being caught in "October's pink undertow."
October 5, 2011
By Frankly Speaking About Cancer Internet Radio Show, Host Kim Thiboldeaux
In honor of Breast Cancer Awareness month, on today's episode, the Cancer Support Community focuses on Stage IV breast cancer, or what is commonly referred to as advanced breast cancer. Kim Thiboldeaux is joined by Ginny Knackmuhs, a patient living with and an advocate for advanced breast caner, and Dr. Lidia Schapira, a medical oncologist with a specialty in breast cancer from Gillette Center for Breast Cancer at Massachusetts General Hospital. Tune in to find out how to control advanced breast cancer while maintaining a healthy quality of life.
August 21, 2011
By Katherine O'Brien, I hate breast cancer blog
“Susan was a strong, vocal person who confronted issues head on,” says Shirley Mertz, a fellow MBC Network volunteer. “She played a key role in getting Rep. Rosa De Lauro (CT) to introduce a resolution in the House to declare October 13 as Metastatic Breast Cancer Awareness Day.”
May 28, 2011
By Gayle Sulik
Dian Corneliussen-James, also known as CJ, has a history of helping to find missing persons. Toward the end of her 24-year career as an Air Force Intelligence Officer, Lieutenant Colonel Corneliussen-James took a position in the Defense Prisoner of War/Missing Personnel Office (DPMO) in Washington, D.C., and she continued in that position as a civilian following her Air Force retirement....
CJ didn't know at the time that this particular skill set would later serve in the identification of another group of missing persons, those diagnosed with metastatic (stage IV) breast cancer.
January 18, 2011
By Roni Caryn Rabin, New York Times
By the time Suzanne Hebert realized that her doctor was wrong and that the hard lump in her breast wasn’t a normal part of breast-feeding, the tumor was the size of a stopwatch and the cancer had spread to her spine.