Home > Support

Information on Diagnosis/Treatment

www.AdvancedBC.org

Metastatic breast cancer information and support for patients, family and friends by long-time advocate and author Musa Mayer.

www.BCmets.org
Message board for metastatic breast cancer postings.

www.boneandcancerfoundation.org
Offer a pdf on breast cancer and bone mets, as well as information on pain, surgery and osteonecrosis of the jaw.

www.BrainMetsBC.org 
Source for information on brain metastases in breast cancer. The site is organized by Musa Mayer and other advocates working with government researchers. 

www.BreastCancer.org
A non-profit organization dedicated to providing reliable, complete and up-to-date 
information about breast cancer. Enter metastatic in the search box for specific information.

www.Cancer.gov /800-4-CANCER / M-F 9am - 4:30 pm EST
 (English and Spanish)
The National Cancer Institute's comprehensive site for cancer patients to understand types of cancer, clinical trials, statistics, research and available resources.


www.Cancer.net / 888-651-3038 / M-F 8am - 4pm EST 
Comprehensive consumer site providing timely, oncologist approved information to help patients make informed health-care decisions. Sponsored by ASCO (American Society of Clinical Oncologists), the site includes cancer overviews, coping, and advocacy.

www.HopkinsBreastCenter.org/services/ask_expert

Ask the Expert from Johns Hopkins. Click on metastatic breast cancer and type in your question.

http://ww5.komen.org/

Susan G. Komen has added a section to their website on Metastatic Breast Cancer. click on Understanding Breast Cancer>metastatic breast cancer

 

www.breastcancerdeadline2020.org/breast-cancer ion/
This site, sponsored by NBCC, National Breast Cancer Coalition, a national advocacy group, gives information on the latest research, advocacy issues, and the overarching politics and priorities for breast cancer legislation and government funding.  

www.PubMed.gov 
A service of the National Cancer Institute that provides a free database search of over 19 million life science and medical journals for the advanced user who is familiar with medical/scientific terminology and research methods. 


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Complementary and Alternative Medicine

nccam.nih.gov

the National Center for Complementary and Alternative Medicine, a comprehensive site with useful information from the National Institute of Health (NIH)

 

http://www.mskcc.org/cancer-care/integrative-medicine

Memorial Sloan Kettering Cancer Center in New York offers a comprehensive site on integrative medicine, including information on therapies, herbs and botanicals and integrative research.


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Male Breast Cancer

Symptoms, Diagnosis, Treatment, Research - Male Breast Cancer

www.breastcancer.org/symptoms/types/male_bc/

www.medicinenet.com/male_breast_cancer/article.htm

http://www.cancer.org/Cancer/BreastCancerinMen/DetailedGuide/index

http://www.ncbi.nlm.nih.gov/pubmed/23341341  Study that looked at what subtypes of breast cancer men get.

 

Online Support Forum - Male Breast Cancer

http://community.breastcancer.org/forum/51

 


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Clinical Trials Info

www.cancer.gov/clinicaltrials/education/treatment-trial-guide
How to Find a Cancer Treatment Trial: A 10-Step Guide from the National Cancer Institute

www.BreastCancer.org/treatment/clinical_trials/
 

Informative and easy to follow for basic information on clinical trials. 

www.BreastCancerTrials.org
This site offers a matching service to search for clinical trials that apply to you. 
You need to enter specific medical information. 

www.ClinicalTrials.gov
You need to search by the type of cancer as all cancers are included, and then 
search by your location


www.EmergingMed.com
There is a feature to create your own profile to "match" you with a trial. 

www.cancer.gov
They offer comprehensive information on all trials

www.tnbcfoundation.org (click on RESOURCES to find triple negative trials)
The focus is Triple Negative. They provide tips for general knowledge and direct |
you to www.clinicaltrials.gov for details. 


www.CancerTrialsHelp.org / 877-520-4457

Cancer Clinical Trials - Coalition of cancer Cooperative Groups offers infromation to help you educate yourself about clinical trials. There are a series of questions to help you find a trial.

http://sarahcannonresearch.com/for-patients/search-clinical-trials/breast.dot  1-877-691-7274

Informative site separates out clinical trials for metastatic breast cancer as ER+, Her2+, TNBC and first, second or refractory line of treatment.

 

NEW: FDA patient network

http://www.patientnetwork.fda.gov/find-other-treatment-options

Explains investigational drugs, expanded access, accelerated approval and off label use of approved drugs


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Legal Resources

 

www.cancerlegalresourcecenter.org / 866-843-2572 / M-F 9am-5pm PST
Joint program of the Disability Rights Legal Center and Loyola Law School in California. Provides free and confidential information and resources through telephone counseling on cancer-related legal issues such as insurance coverage, employment issues, and potential legal problems.

www.patientadvocate.org / 800-532-5274 
Patient Advocate Foundation is a non profit founded in 1996 to solve insurance and 
health access issues. They offer legal counseling to patients dealing with managed 
care, insurance, financial issues, job discrimination, and debt.

www.cancerandcareers.org
Cancer and Careers is a program of the CEW Foundation, the charitable arm of 
Cosmetic Executive Women, Inc., a New York-based non-profit trade organization of 
4,000 executives in the beauty, cosmetics, fragrance, and related industries. They 
offer legal and insurance information and lists of resources to deal with job related
issues including disability. Click on Legal and Insurance Issues. 

www.cancerlinc.org / 877-644-5462
Legal Information for Cancer is a non-profit community-based organization, serving the Central Virginia community. They provide education, information, counseling and referral services for legal assistance to individuals with a cancer diagnosis. 
 If no other resources are available, they assist financially with costs related to wigs, prostheses, lymphedema products and costs of chemo and medications.

 


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Financial Assistance

American Breast Cancer Foundation
www.abcf.org / 877-539-2543

 

American Cancer Society
www.cancer.org / 800-227-2345

Based on your location, assistance is offered to reimburse expenses related to cancer treatment.

Cancer Care
www.CancerCare.org / 800-813-HOPE / M-F 8am - 8pm EST
Non-profit organization founded in 1944 offering counseling, support groups, education and financial aid. Avon Cares Program offers limited aid for homecare, childcare and transportation. Linking Arms Program provides limited funds for oral chemo, pain, and anti-nausea medications through Komen funding. Cancer Care provides information on other aid programs. They do not offer funds for basic living expenses. Eligibility is based on assets - defined as savings, CDs, checking, 401K. From the Home page, go to Financial Help > Financial Assistance > pdf application available online to be mailed in.

Cancer Care Co-Payment Assistance Foundation
www.cancercopay.org / 866-552-6729 / M-Th 9am - 7pm; F 9am - 5pm EST
Non-profit foundation affiliated with cancercare.org that specializes in copay assistance since April 2008. They offer full or partial assistance with your copay. You must be insured (private or Medicare) with income less than 4 times the poverty level with consideration for high cost of living areas. You can apply online or on the phone.

Cancer Fund of America
www.cfoa.org / 800-578-5284
A physician must certify your diagnosis and financial need for assistance with costs 
of medical supplies and products.

Government Benefits Screening
www.GovBenefits.gov 
An online tool to improve access to government assistance programs. On the home page, click on the BENEFITS tab to get to the questionairre. You do not need to provide your name. There is also a Benefits Quick Search on the home page.

The Health Well Foundation
www.healthwellfoundation.org / 800-675-8416 / M-F 9am - 5pm EST
A non-profit organization that offers assistance with copay or insurance premium payments for insured patients, based on availability of funds. They have a quick eligibility test online. If you are eligible, you can complete the application online. You may call for help with the application process or to receive a paper application in the mail.

Hill Burton Program
http://www.hrsa.gov/gethealthcare/affordable/hillburton/ 800-638-0742 and 800-492-0359 in MD
A law from 1946 requires certain facilities that receive Federal construction funding to provide free or reduced cost care, based on patient income. Check on the list of Hill Burton facilities at www.hrsa.gov/hillburton/hillburtonfacilities.htm. You must be at federal poverty level income limit in most cases. Check for income guidelines and apply at the Business Office of an HB hospital.

Medicaid Benefits by State (Kaiser Family Foundation) 
medicaidbenefits.kff.org/state_main.jsp
Medicaid benefits database--look up available benefits by state.

National Brain Tumor Society

www.braintumor.org 800-934-2873
Financial assistance is offered to cover the costs of transportation, co-pays, home and child care for those with metastatic brain tumors.

National Cancer Institute 
www.cancer.gov / 800-4-CANCER / M-F 9am-4:30pm EST
Government cancer research agency created in 1937; mission expanded in 1971 to include cancer information dissemination, including financial, insurance and legal information. All information is available directly on the website, by speaking with someone on the telephone, or having a live chat session with an NCI cancer specialist. For the Live Chat, start on the Home page > Quick Links on the left column > Questions About Cancer > Live Help.

National Council on the Aging ( 55 yrs) 
www.BenefitsCheckUp.org / 202-479-1200
Non-profit organization formed in the 1950's to serve and advocate for older Americans. This comprehensive web-based service screens for benefits programs for seniors with limited income and resources. Their services include finding comprehensive benefits, prescription drug assistance, and medicare prescription drug assistance. You need to click on one of the three links and answer the questions to receive an on-screen list of recommendations for benefit assistance.

Needy Meds
www.needymeds.com / website based; no phone access

Non-profit oranization founded in 1997. They provide information on medicine and health care assistance programs. They do not provide direct aid. They offer information on Patient Assistance Programs run by pharmaceutical companies,and show listing of free clinics and other government assistance programs. Follow the link under your prescription drug to apply and the site takes you to the pharma company program.

Patient Access Network Foundation
www.panfoundation.org / 866-316-7263
For those eligible, financial assistance is offered for co-pays, deductibles and medications.

Patient Advocate Foundation on CoPay Relief
www.copays.org / 866-512-3861 / M-F 8:30am - 5pm EST
Non-profit organization providing assistance with copays for prescription drugs based on financial eligibility and monthly disease fund availability. You must be insured (private or Medicare). Eligibility is on a case-by-case basis. You can complete the application online from the Home page (click on Start The Application Process) or by calling a counselor at the toll free number.
 

Patient Advocate Foundation
www.patientadvocate.org/report.php  / 800-532-5274
They solve insurance and healthcare accesss problems. The National Financial Resource Guidebook for Patients is a state-by-state directory of information for patients seeking financial relief for a broad range of needs.

Partnership for Prescription Assistance
www.pparx.org / 888-477-2669 / M-F 8am - 9pm EST
This organization, sponsored by the pharmaceutical companies, is a single point of contact for drug assistance programs. They recommend programs and you can download the application, or have it sent to you by mail. This service is for those who are uninsured for prescriptions. Income eligibility limits vary by drug and program.

Patient Services Incorporated
www.uneedpsi.org / 800-366-7741
Based on availability of funding, PSI offers assistance in obtaining health insurance 
coverage and ways to satisfy various copays. Their current program covers bone metastases - not breast cancer.

The Pink Fund
http://www.thepinkfund.org/ 877-234-PINK (7465)
Short term financial aid during treatment.

RX Outreach
www.rxoutreach.com / 800-769-3880
For those who financially qualify, they offer a 90-day supply of prescription medications for $20 - $40, regardless of the number of pills in the prescription.

Social Security Disability  (SSDI)
http://www.ssa.gov/dibplan/index.htm  1-800-772-1213 
Stage IV cancer automatically qualifies you for disability and expedited processing of your application under the compassionate allowances program--a diagnosis that is terminal. See http://www.ssa.gov/compassionateallowances/. You have to have a work history and cannot currently be earning more than $1000 month. There are also benefits for your dependents and you become eligible for Medicare after a 2 year waiting period from the date of your eligibility. To apply click here.


Together RX Access
www.togetherrxaccess.com / 800-444-4106

For those in the U.S. and Puerto Rico with no prescription drug coverage who are not eligible for Medicare and who meet the required income guidelines, they offer a free prescription drug card. 


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Housing for Medical Appointments/Treatment

American Cancer Society Hope Lodge / 800-227-2345
www.cancer.org/docroot/subsite/hopelodge/index.asp
The site provides info on free temporary housing when in treatment in another city, 
for patients and their families. Eligibility requirements vary by location.

Hospitality Homes / 888-595-4678
www.hosp.org

This organization proivides info on no-cost, short-term, temporary housing in private 
homes of host volunteers for families and friends of patients when they travel to 
Boston for patient care. Temporary housing for the patient is determined on a 
case-by-case basis. 

The Boston Hospital Housing Network
www.hosp.org/hosp_housing.htm

This group offers information on a diverse range of housing options for patients 
and their families.

Joe's House / 877-563-7468
www.joeshouse.org/

This online service helps patients and their families find lodging options. They also partner with hotels that offer discounted rates to patients when they travel for treatment. There are some free facilities listed. 

Nat. Assoc. of Hospital Hospitality Houses / 800-542-9730
www.nahhh.org
This site includes more than 150 facilities across the country that provide lodging and support services to patients and their families while receiving medical treatment. The cost of the accommodations can vary. Click on FIND LODGING to view availability in the city and state of choice.


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Free Local Transportation

www.cancer.org / 800-227-2345
Road To Recovery is a program sponsored by the American Cancer Society to provide transportation for cancer patients to and from treatment, according to the needs and available resources in each community. Volunteer drivers donate their time and use of their cars. Call or go online to check availability in your area.


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Free Air Transportation

 

www.corpangelnetwork.org / 866-328-1313
Charitable organization whose mission is to ease the emotional stress, physical discomfort, and financial burden of travel for cancer patients by arranging free flights to treatment centers, using empty seats on corporate aircraft. You must be able to walk unassisted. Financial need is not a requirement. Call or email at least 3 weeks in advance.

www.lifelinepilots.org / 800-822-7972 7:30am - 4:30pm CST
Midwest non-profit group that flies financially needy patients to medical centers. Patients must be able to walk unassisted and require no medical assistance in flight; must be financially needy; able to fly in small 4-6 passenger plane. You need to provide your own transportation to the airport.

www.patienttravel.org / 800-296-1217 (contact available after hours)
Free referral service to facilitate patient access to appropriate charitable medical air transportation resources in the U.S. 

www.aircharitynetwork.org / 877-621-7177
Network of angel flights organizations that provide free air transportation for financially needy patients. Patients must be able to walk unassisted and require no medical assistance in flight; must be financially needy; able to fly in small 4-6 passenger plane; provide your own transportation to the airport. This network includes www.angelflight.com .

 


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Free Publications

 

When you go to the website of each organization, you can call the phone number
or click on the CONTACT US button to request a brochure.

MBCN / 888-500-0370/ Metastatic Breast Cancer Diagnosis Brochure

Cure / 214-367-3306 / magazine for cancer patients; includes all cancers

Willow (in Canada) / 888-778-3100 / Living With Metatatic Breast Cancer (brochure)

LBBC /888-753-5222/Understanding Treatment Options for Advanced Breast Cancer (brochure)

The Wellness Community - Frankly Speaking About Advanced Breast Cancer (brochure & DVD)

Young Survival Coalition / 877-YSC-1011/ The Beautiful 8 (DVD)

 

Cancer Care /800-813-HOPE/brochures: Treating Recurrent Metastatic Breast Cancer; 
Update on Metastatic Breast Cancer ; A Helping Hand - Financial Resources

Breast Cancer Org - Understanding Metastatic Breast Cancer (brochure)

Bone and Cancer Foundation - PDFs on breast cancer and bone metastases, Vitamin D, pain, and surgery.

Patient Resources: 816-333-3595 x26  Cancer Guide - Metastatic Breast Cancer(brochure) 
email: prp@patientresource.net

 


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